Организация здравоохранения
MEDICAL AND ORGANIZATIONAL ASPECTS OF PEDIATRIC PALLIATIVE CARE
A. A. Ishutin1, V. S. Stupak2, L. S. Zolotareva1, E. S. Feduleeva1
1. Moscow Regional Hospice for Children, Moscow Region
2. Federal Research Institute for Health Organization and Informatics of Ministry of Health of the Russian Federation, Moscow
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Summary:
Introduction. The growing need for pediatric palliative care (PC) and the volume of its provision causes studying the opinions of employees of medical organizations providing PC to children.
Aim. To study the medical and organizational aspects of pediatric palliative care.
Materials and methods. A prospective cohort study in the form of a sociological survey (questionnaire) of 258 employees of medical organizations providing pediatric PC in the Moscow Region. The survey was conducted in 2019-2021 on the basis of the State Autonomous Healthcare Institution of the Moscow Region "Moscow Regional Hospice (for children)".
Results. Respondents highly rated the quality (8.0 points out of 10), accessibility (8.0 points), territorial accessibility (8.0 points) of PC, conditions in the organization (10.0 (points), provision with modern methods of examination (9.0 points) and equipment (10.0 points). The results of the study showed the need to increase the number of beds in hospitals (according to 56.8%), expand the volume of outpatient care (81.2%), develop the provision of PC on the basis of general somatic hospitals and polyclinics of the Moscow Region (56.5%), increase the number of beds in day hospitals, improve coordination between treatment and palliative programs (59.1% ), improve funding (57.6%). According to the respondents, hospital care (50.2% of respondents) and home care (69.6%) need priority funding. 17.7% of respondents indicated that they prefer the term "maintenance therapy", and 23.6% - that if the term "maintenance therapy" was used, PC would be prescribed earlier. 71.6% of respondents indicated a satisfactory time from diagnosis to the appointment of PC, 66.8% - a long time from the start of PC to death, 86.0% - a sufficient period of treatment. 78.4% of department heads indicated that their organization develops an individual PC program.
Discussions. Priorities for developing PC include: increasing accessibility, early start, increasing the number of PC providers, evaluating the effectiveness of PC, and reducing stigma. PC coordination, changing logistics depending on existing conditions are the key components of high quality pediatric PC. PC, based on an individual approach, can support the patient and his/her family members, reduce their discomfort and suffering.
Conclusion. Despite the high assessment by respondents of most aspects of PC for children, in the Moscow Region there is a need to increase the number of beds in hospitals, expand the volume of out-of-hospital care, develop the provision of PC on the basis of general somatic hospitals and polyclinics, increase the number of places in day hospitals, improve coordination between medical organisations, formation of individual palliative care programs, improved funding, especially inpatient and home care.
Keywords Palliative care; Children; Medical and organizational measures; Medical and organizational aspects; Hospice; Reducing of suffering; Improving The quality of life.
Bibliographic reference:
A. A. Ishutin, V. S. Stupak, L. S. Zolotareva, E. S. Feduleeva, MEDICAL AND ORGANIZATIONAL ASPECTS OF PEDIATRIC PALLIATIVE CARE // Scientific journal «Current problems of health care and medical statistics». - 2022. - №5;
URL: http://healthproblem.ru/magazines?textEn=959 (date of access: 21.11.2024).
URL: http://healthproblem.ru/magazines?textEn=959 (date of access: 21.11.2024).
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